Interconexión entre empatía en la atención de la salud y los derechos de los pacientes

Autores/as

  • Aline Albuquerque Universidad de Brasilia (Brasil)

DOI:

https://doi.org/10.61243/calamo.15.119

Palabras clave:

Empatía, Paciente, Derechos, Bioética

Resumen

Este estudio, que se caracteriza por ser una investigación teórica, tiene como objetivo desarrollar aportes teóricos que apoyen las interconexiones entre la empatía en la atención de la salud y los derechos de los pacientes, entendidos como los derechos que tienen todas las personas cuando se encuentran bajo la atención de salud. Se sabe que, en vista del paternalismo médico histórico y el alejamiento del paciente del centro asistencial, una ley de derechos del paciente no es fácil de implementar. Por tanto, se concluye en este artículo que el movimiento en torno a la empatía es un aliado en la implementación de los derechos de los pacientes, ya que ambos combinan supuestos básicos, como la esencialidad de las interacciones sociales y la percepción del otro como persona con un valor único, que da lugar a mandatos morales de respeto y trato digno.

Biografía del autor/a

Aline Albuquerque, Universidad de Brasilia (Brasil)

Investigadora visitante en el Instituto Bonavero de Derechos Humanos de la Universidad de Oxford. Tiene un posdoctorado por la Universidad de Essex. Es: profesora de Bioética en la Universidad de Brasilia, Abogada de la Unión, directora del Instituto Brasilero de Derecho del Paciente, coordinadora general del Observatorio de Derechos de los Pacientes del Programa de posgrado en Bioética de la UnB.

Citas

Adams, Sara B. 2018. "Empathy As Na Ethical Imperative". Creating Nursing, nº 3: 166-172.

Adom, Dickson, Hussein, Emad Kamil e Jow Adu Agyem. 2018. Theoretical and Conceptual Framework: Mandatory Ingredients of a Quality Research. Acceso o 2 de abril de 2021. https://www.worldwidejournals.com/internationaljournal-of-scientific-research-(IJSR)/article/theoretical-and-conceptual-frameworkmandatory-ingredients-of-a-quality-research/MTM5NDE=/?is=1.

Albuquerque, Aline. 2020. Manual de Direito do Paciente. Belo Horizonte: CEI.

Albuquerque, Aline. 2016. Direitos Humanos do Paciente. Curitiba: Juruá.

Annas, George J. 2004. The rights of patients. Nova Iorque: New York University.

Azevedo, Sonia Maria Lourenço, Márcia Maria Peruzzi Elia da Mota e Marsyl Bulkool Mettrau. 2018. "Empatia: perfil da produção científica e medidas mais utilizadas em pesquisa". Est. Inter. Psicol. v. 9, nº 3.

Barello, Serena e Guendalina Graffigna. 2020. Caring for Health Professionals in the COVID-19 Pandemic Emergency: Toward an “Epidemic of Empathy” in Healthcare. Front. Psychol., v. 9.

Bas-Sarmiento, Pilar, Martina Fernández-Gutiérrez, María Baena-Baños, Alba Correro-Bermejo, Pablo Sergio Soler-Martins, Sonia de la Torre-Moyan. 2020. «Empathy training in health sciences: A systematic review». Nurse Educ Pract, nº 44. https://doi.org/10.1016/j.nepr.2020.102739

Bikker, Annemieke P., Cotton, Philip e Stewart W. Mercer. 2014. Embracing empathy in healthcare. London: Radcliffe.

Cohen, Jonathan, e Tamar Ezer. 2013. "Human rights in patient care: a theoretical and practical framework". Journal of Health and Human Rights, v. 15, nº 2: 7-19.

Coplan, Amy. 2014. "Understanding Empathy: it features and effects". Empathy: philosophical and psychological perspectives, editado por Coplan, Amy e Peter Goldie. 3-18. Oxford: Oxford.

Cumper, Peter, e Tom Lewis. 2018. "Empathy and Human Rights: the Case of Religious Dress". Human Rights Law Review, v.18, nº 1: 61–87.

De Waal, Frans. 2020. Primatas e Filósofos. São Paulo: Palas Athena.

Decety, Jean e Jason M. Cowell. 2014. "The complex relation between morality and empathy". Trends in Cognitive Sciences, v. 18, nº 7.

Decety, Jean e Jason M. Cowell. 2010. "The neurodevelopment of Empathy in Humans". Developmental Neuroscience, vol. 31: 257-267.

Dworkin, Ronald. 1973. "The Original Position". University of Chicago Law Review, Vol. 40, Iss. 3: 500-533. https://chicagounbound.uchicago.edu/uclrev/vol40/iss3/4/

Eby, Don. 2020. "Empathy in General Practice: Its Meaning for Patients and Doctors". British Journal, v. 68, nº 674: 412-413.

Erdman, Joanna N. 2017. "Human Rights Education in Patient Care". Public Health Reviews, v. 38, nº 9.

European Commission. 2016. Patients’ Rights in the European Union Mapping Exercise. Luxembourg: Publications Office of the European Union.

Foster, Adriana E. e Zimri S. Yaseen. 2019. Teaching empathy in healthcare. London: Springer.

Goodman, Ryan e Derek Jinks. 2013. Socializing states. Oxford: Oxford.

Halpern, Jodi. 2014. "From Idealized Clinical Empathy to Empathic Communication in Medical Care". Med Health Care and Philos, n.º 17: 301–311. https://doi.org/10.1046/j.1525-1497.2003.21017.x

Halpern, Jodi. 2003. "What is Clinical Empathy?". Journal of General Internal Medicine, vol.18, n.º 8: 670-674. DOI: https://doi.org/10.1046/j.1525-1497.2003.21017.x

Halpern, Jodi. 2001. From Detached Concern to Empathy. Oxford: Oxford.

Hirn, Sebastian Ludwig, Regina T. Weibmann, Christof Zoelch, Joachim Thomas. 2020. "Fostering Empathy Skills in Mainstream Public School Pupils: Efficacy Assessment of the EPaN Empathy Training Program". Journal of Education Training Studies, vol. 8, n.º 3. DOI: https://doi.org/10.11114/jets.v8i3.4689

Hirsch, Elliot M. 2007. "The Role of Empathy in Medicine: A Medical Student’s Perspective". AMA Journal of Ethics, 9(6): 423-427. DOI: https://doi.org/10.1001/virtualmentor.2007.9.6.medu1-0706

Hoffman, Martin L. 2014. "Empathy, Justice, and the Law". En: Empathy: Philosophical and Psychological Perspectives, editado por Coplan, Amy y Peter Goldie, 231-254. Oxford: Oxford.

Hojat, Mohammadreza. 2016. Empathy in health professions education and patient care. London: Springer.

Howick, Jeremy e S. Rees. 2017. "Overthrowing Barriers to Empathy in Healthcare: Empathy in the Age of the Internet". Journal of the Royal Society of Medicine, vol. 110, Iss. 9. DOI: https://doi.org/10.1177/0141076817714443

Howick, Jeremy et al. 2019. "The Friendly Relationship Between Therapeutic Empathy and Person-centred Care". European Journal of Person Centred Healthcare.

Howick, Jeremy et al. 2018. «Therapeutic empathy: what it is an what it isn’t». Journal of Royal Society of Medicine.

Hunt, Lynn. 2009. A invenção dos direitos humanos: uma história. São Paulo: Companhia das Letras.

Jeffrey, David. 2016. "Clarifying Empathy: The First Step to More Humane Clinical Care". British Journal of General Practice, v.66, nº 643: e143-e145.

Kerasidou, Angeliki e Ruth Horn. 2018. "Empathy in Healthcare: The Limits and the Scope of the Empathy in Public and Private Systems". En: Marketisation, Ethics and Healthcare: Policy, Practice and Moral Formation, editado por Feiler, Therese; Hordern, Joshua; Papanikitas, Andrew, 163-173. Oxford: Oxford.

Kirkscey, Russell. 2018. "Bioethical communication: shared-decision making and relational empathy". Journal of Communication in Healthcare, vol. 11, Iss. 3: 164-174. DOI: https://doi.org/10.1080/17538068.2018.1447757

Kitayama, Yuka y Yoriko Hashizaki. 2018. "From pity to Compassion: The Ethics of Care and Human Rights Education". Human Rights Education in Asia-Pacific, 269-273. https://www.researchgate.net/publication/348488458_From_Pity_to_Compassion_The_Ethics_of_Care_and_Human_Rights_Education

Larenz, Karl. 1997. Metodologia da Ciência do Direito. Lisboa: Calouste Gulbenkian.

Leino-Kilpi, Helena e Kristiine Kurittu. 1995. "Patients’ Rights in Hospital: An Empirical Investigation in Finland». Nursing Ethics, n.º 2: 104-113.

Mercer, Stewart y William Reynolds. 2002. "Empathy and Quality of Care». British Journal of General Practice, vol. 52, Suppl: S9-12. https://bjgp.org/content/52/supplement/S9

Moudatsou, Maria et al. 2020. "The Role of Empathy in Health and Social Care Professionals". Healthcare, v.8, Iss. 1. DOI: https://doi.org/10.3390/healthcare8010026

Patel Alexis Pelletier-Bui, Stephanie Smith, Michael B. Roberts, Hope Kilgannon, Stephen Trzeciak, Brian W. Roberts. 2019. "Curricula for Empathy and Compassion Training in Medical Education: A Systematic Review". PLoS ONE 14(8): e0221412. DOI: https://doi.org/10.1371/journal.pone.0221412

Püras, Dainius. 2017. "Human Rights and the Practice of Medicine". Public Health Reviews, v. 38, nº 9. DOI: https://doi.org/10.1186/s40985-017-0054-7

Putturaj, Meena, Sara Van Belle, Bart Criel, Nora Engel, Anja Krumeich, Prakash B Nagendrappa, NS Prashanth et al. 2020. "Towards a Multilevel Governance Framework on the Implementation of Patient Rights in Health Facilities: A Protocol for a Systematic Scoping Review". British Medical Journal Open, 10: e038927. DOI: https://doi.org/10.1136/bmjopen-2020-038927

Reale, Miguel. 2018. Lições Preliminares do Direito. São Paulo: Saraiva.

Riess, Helen. 2018. The Empathy Effect: Seven Neuroscience-Based Keys for Transforming the Way We Live, Love, Work, and Connect Across. Boulder: Sounds True.

Rosenberg, Marshall. 2015. Nonviolent Communication. Encinitas: PuddlerDancer.

Sajo, Andras. 2011. "Empathy and human rights: the case of slavery”. Public Law & Legal Theory Research Paper Series Working Paper, n.º 11-15. Acceso o 2 de abril de 2021. https://www.researchgate.net/publication/228193890_Empathy_and_Human_Rights_The_Case_of_Slavery.

Sampaio Ferraz J.R., Tércio. 2013. Introdução ao Estudo do Direito. São Paulo: Atlas.

Schultz, Nadine. 2014. Empathy as the Key to Equality and Human Rights: An Investigation of Emphaty's Role in Inter-group Relations and Discrimination. Acceso o 2 de abril de 2021. https://repo.gchumanrights.org/handle/20.500.11825/643

Schurz, Matthias, Joaquim Radua, Matthias G. Tholen, Lara Maliske, Daniel S. Margulies, Rogier B. Mars, Jerome Sallet, Philipp Kanske. 2021. "Toward a Hierarchical Model of Social Cognition: A Neuroimaging Meta-Analysis and Integrative Review of Empathy and Theory of Mind". Psychological Bulletin, v. 149, n.º 3: 293–327. DOI: https://doi.org/10.1037/bul0000303

Szasz, Thomas y Marc Hollender. 1956. "The Basic Models of the Doctor-Patient Relationship". Archives of Internal Medicine, n.º 97: 585-592. DOI: https://doi.org/10.1001/archinte.1956.00250230079008

The Institute of Medicine. 2001. Crossing the Quality Chasm. A New Health System for the 21st Century. Acceso o 2 de abril de 2021. https://www.nap.edu/catalog/10027/crossing-the-quality-chasm-a-newhealth-system-for-the.

Vinson, Alexandra H. e Kelly Underman. 2020. "Clinical Empathy as Emotional Labor in Medical Work". Social Science & Medicine, v. 251. DOI: https://doi.org/10.1016/j.socscimed.2020.112904

Von Harbou, Frederick. 2013. "A Remedy called Empathy: The Neglected Element of Human Rights Theory". Archiv fur Rechts- und Sozialphilosophie, v. 99, nº 2: 133-151. DOI: https://doi.org/10.25162/arsp-2013-0014

Publicado

2021-07-01

Cómo citar

Albuquerque, A. (2021). Interconexión entre empatía en la atención de la salud y los derechos de los pacientes. Revista Cálamo, (15), 8–22. https://doi.org/10.61243/calamo.15.119

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Dossier